Medical registries are systematic collections of data about certain diseases.
They have become very important tools for physicians who can access relevant medical information of many patients with same diagnossis and treatments. The records within registries enables to follow patterns in disease diagnosis, treatment and/or survival patterns over time.
There are registries for cancer diseases as well as other therapeutical areas. A recent article in the NYT has a detailed overview of a registry of cystic fybrosis patients and its contribution in fighting the disease.
As registries become more widespread, it is important for companies to review their role and cooperation with such initiatives. Whether it is data or sponsorship that pharma provides, the benefits lie with the connection between the medical community and the industry.
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